Therapeutic education program for patients with hemophilia

The therapeutic education program for patients with hemophilia is a comprehensive and structured concept aimed at improving the quality of life for those affected. Developed by an interdisciplinary team, the program includes a variety of educational resources, such as videos, images, posters, brochures, and booklets. It consists of a four-step approach that begins with an educational diagnosis to determine the individual needs and expectations of the patients. Based on this, an educational goal is established, which is documented in an educational mandate. The program offers a personalized approach that allows patients to learn at their own pace and engage with their condition. It includes a total of six sessions, consisting of three individual appointments and three group workshops that cover various aspects of hemophilia and help patients better understand and accept their condition.