Muskelkrank leben

The shocking diagnosis of "muscle disease" is overwhelming and turns everything upside down. Just like with a cancer diagnosis, suddenly nothing is as it was before. Countless questions arise: What are neuromuscular diseases, and what do all the medical terms mean? How will my life continue, how much time do I have left, how do I organize my daily life, and who can help me? This book serves as both a starting point and motivation for living a self-determined life despite illness. The author also shares significant personal experiences before and after the onset of his own disease. It is a work that places quality of life at its center and addresses both sick and healthy individuals. The book focuses on the two diseases Amyotrophic Lateral Sclerosis (ALS) and Spinal Muscular Atrophy (SMA).